Keeping our online membership community safe and positive

AbScent recognises the value of peer support in helping people to meet the challenges of living with a smell disorder, which is why we are here. We run this network so that people affected by smell disorders have a safe space to comment freely and share experience with others who understand. Membership is open to anyone with a smell disorder, or their carers. 

We are mindful of data protection laws and, to ensure that people can speak freely and ask questions, we ask that you respect the confidential nature of the groups and refrain from discussing the experiences of others outside of the group. 

This is not a space for other kinds of professionals with an interest in people with smell disorders, although we have some trusted members of our network who will look in from time to time. If you are a researcher or HCP interested in understanding patient experience, please respect the privacy of our group members and instead contact us directly about any queries at info@abscent.org.

We welcome members who use groups in a positive and respectful way. We ask members to:

• Keep discussion to matters related to smell and taste loss and the related topics..
• Be considerate and do not use foul or disrespectful language.
• Share your own experience but don’t endorse or give medical advice. We maintain high standards for scientific rigour. Unsubstantiated theories that may endanger public health or spread misinformation may be removed. 
• Be supportive, constructive and non-judgemental when responding to posts.
• Respect the community and don’t spam or promote your personal or external interests.

People who do not use groups in the spirit they are intended may be removed.